View Single Post
Old 10-15-2013, 07:04 AM   #65
norkdo
Senior Member
 
norkdo's Avatar
 
Join Date: Jul 2011
Location: ottawa canada
Posts: 367
Red face Re: Emergency mri &%#@$!!

Oh thank you Denise for your post. Thank you thank you.
Your spirit is such a massive treat. Whether low or celebratory it makes not one whit of difference. It just is something I crave to read. You are the most splendid, alive, and life-giving treat. It makes no difference whether your post is indicating sadness or disability or joy and accomplishment. You are the light and soul, to me, of this board and I can't stop rereading your posts, whatever they indicate.
Of course I would love great news and I know those will come. But don't forget to sleep a ton. The body heals during sleep. It has to shut down operations to heal. (My vet instructed "no walks" while my new four month old great dane is recuperating from kennel cough and ringworm...the latter provided by the free kitten the farmer gave me when i purchased the boston great dane pup at three months of age...thanks kitty!) It hit me like a lightning bolt. Of course! Bodies can only heal during shut down of operations!
Me too, re sleep.
I recall such fatique for a couple of years before discovery of "our" (yours and mine) onset of cancer at stage three.
Fatigue went away after treatment (well after the post treatment fatigue went away). Now it is back. I know it is advancement of the cancer beyond the node in my chest that was treated by radiation and so-called "disappeared" but i may be lucky and perhaps it isn't. I find out end of next month when i go for my scans. No symptoms but fatigue. Funny enough the fear is so minimal that the cancer advances because i have read these boards and know that the signature lines contain survival beyond the worst of symptoms that you, for example, are currently enduring.
So thank you for sharing everything as God is in the details of the posts and the excellent survival beyond the worst of pain and weird symptoms.
Love you,
Inspired by you.
You, to me, have become the heart of this site.
Manda's passing is hard on us. We honour her incredibleness in our tears for her.
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
norkdo is offline   Reply With Quote