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Incorrect Info
I'm not sure what to do....as I was getting my Herceptin infusion last week, I overheard the head infusion nurse tell another patient that Tykerb is the pill form of Herceptin. In shock, I didn't say anything and bit my tongue. Wow, I suppose I will tell my doctor at my next appt....it just doesn't give me much confidence in her or that office. She also laughed when I used ice on my hands and feet during my Doxil infusion 2 weeks prior....the Doxil nurse and the Doxil website quote a study on how it helps H/F Syndrome in 94% of those studied.
I am still in shock that information is being given out incorrectly. What does everyone think I should do? Look for a new Onc? 
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Dx 5/1/07 (age 47), Left IDC
ER less than 5% +, PR -, HER+ FISH 5.4
Lumpectomy 5/07, Quadrantectomy 6/07
AC 7/07 -10/07, Liver mets dx 9/07 (liver bx)
Taxotere/Herceptin 10/07 -12/07
Herceptin only 1/08 - 7/08
Mastectomy 3/08, RADS 4/08 - 5/08
Brain MRI 5/08 clear
Gemzar/Herceptin 7/08-9/08
Lymphedema 8/08
RADS/Hyperthermia 10/08-11/08
Abraxane/Herceptin 12/08-3/09
Doxil/Herceptin 3/09 to 5/09
Xeloda/Tykerb 6/09-10/09
Navelbine/Xeloda/Tykerb 10/09-12/09
Tykerb/Herceptin 1/11/10
Tykerb/Herceptin/Ixempra 2/1/10
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