HER2 Support Group Forums - View Single Post - Really Scared

Thank you, ladies. I had my pet/ct last night and although I'm anxious, I feel somewhat that, "whatever will be will be." I really appreciate that you shared your stories. It helps me keep from going too far down the rabbit hole. I'll post results when they come in.

__________________
Kathryn Ellman

8/2013 Diagnosed age 42 with boys aged 2.5 and 6, Stage 11b, 1 cm her2+++, 30% ER positive, 5% PR positive, Rt Breast. Also DCIS in second spot of rt breast, high grade.
9/2013 Bilateral mastectomy, 3 nodes positive
10/13 Started AC/TH, Perjeta and Herceptin
1/14 Finished Chemo
3/14 Radiation, 5 weeks
4/14 Started Tamoxifen
6/14 Discontinued Tamoxifen due to extreme joint pain, exhaustion and depression
6/14 Started Exemestane and Zolodex shots to suppress ovaries
11/14 Finished Herceptin
11/14 Discontinued Exemestane due to similar side effects as Tamoxifen.
1/15 Reconstruction
3/15 CT Scan (routine) shows possible liver mets.
3/15 PET/CT scan shows no mets - huge sigh of relief
4/15 Began Letrozole. Knee and hip joint discomfort but minimal. Otherwise, knocking on wood - so far, so good!

07-06-2017, 09:57 AM	#7
Heathcliff4 Senior Member Join Date: Feb 2014 Posts: 52	Re: Really Scared - Pet Scan Ordered Thank you, ladies. I had my pet/ct last night and although I'm anxious, I feel somewhat that, "whatever will be will be." I really appreciate that you shared your stories. It helps me keep from going too far down the rabbit hole. I'll post results when they come in. __________________ Kathryn Ellman 8/2013 Diagnosed age 42 with boys aged 2.5 and 6, Stage 11b, 1 cm her2+++, 30% ER positive, 5% PR positive, Rt Breast. Also DCIS in second spot of rt breast, high grade. 9/2013 Bilateral mastectomy, 3 nodes positive 10/13 Started AC/TH, Perjeta and Herceptin 1/14 Finished Chemo 3/14 Radiation, 5 weeks 4/14 Started Tamoxifen 6/14 Discontinued Tamoxifen due to extreme joint pain, exhaustion and depression 6/14 Started Exemestane and Zolodex shots to suppress ovaries 11/14 Finished Herceptin 11/14 Discontinued Exemestane due to similar side effects as Tamoxifen. 1/15 Reconstruction 3/15 CT Scan (routine) shows possible liver mets. 3/15 PET/CT scan shows no mets - huge sigh of relief 4/15 Began Letrozole. Knee and hip joint discomfort but minimal. Otherwise, knocking on wood - so far, so good!