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Old 02-12-2012, 10:52 AM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Confusing Voicemail Message from Onc

Hi Penny,
I'm glad you have an appt tomorrow, so you won't have to bear the worrying much longer! It sounds like your once is not panicking, so try not to hit that button either. You need more information.

I've found that I view information differently than my oncologists. To me, anything short of NED, shrinking or stable stinks. To them, I think they take a wider view: is the disease basically under control? Is there an imminent crisis? Is the change significant, or even real - or a function of a difference in measurement because scans are not clear?

Someone once told me if your oncologist is happy, you should be happy. I guess I've also learned to scale that down to if my oncologist is not too worried, I shouldn't be either. Most of the time, anyway Not always easy to do, for sure. And of course even though they care, nobody cares as much as you do!

Try not to worry, write down all your questions for tomorrow and go on ready to take on whatever.

Please let's know what you find out - were all pulling for you!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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