[tousled1]

Kelly,

You are not alone! I too feel absolutely terrible on Herceptin. I've tried the every week and every three weeks, reconstitution with saline water (makes it a little more bearable), headaches constantly, and just an overall feeling of not feeling good. I have a PET/CT scan scheduled for Friday morning and when I go to the oncologist on March 1 for my next treatment I should get the results of my last HER2 serum test. I have been thinking very hard on this issue and have decided that if my PET/CT is clear and my HER2 serum level is down I might just stop the Herceptin. I only have until June to go but I'm feeling worse with each treatment. All I want is to feel "normal." I have no idea anymore what "normal" is but I know it's not how I'm feeling now. I have tried taking benedryl and tylenol right before the infusion and that doesn't help. Another reason I'm considering stopping the Herceptin if everything is ok is that my last echocardiogram showed atrial enlargement. I was informed that's from the Herceptin and it will be permanent. I don't want to beat this disease to then die of heart problems. My heart has me very concerned. Sorry for rambling but sometimes it helps to put things in writing.