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Old 07-05-2010, 08:22 AM   #1
Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
skin mets er-/pr- anyone else? Think I am ALONE!

Am not being flippant but it seems there is no one else with skin mets here. Gives me a bad feeling. Anyway, just in case someone can help - have to stop herceptin for 4 wks cos of heart issues so only taxotere to halt the buggers now. Am in a mood today - long day on oncology ward - no good news. Am thinking of stopping treatment and just living while I can but have decided to give it the two months to see if anything stops growing. ANY advice, or encouraging news from someone who has dealt with the same situation would be very welcome.
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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