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Re: Ugh Brain Mets!
Thanks everyone for the kind comments and support! I just got the results of my MRI two months post treatment. No new lesions, the large one is down to 8 mm from 15. The small ones are about the same or a bit smaller. No indication of active disease was the call from the radiation onc. I am so relieved! The onc said it will take a while for the body to reabsorb the tissue from the lesions and possibly might have some scarring. No edema was present (thank goodness, I don't want any more dex!). The rest of me stays NED (well sorta Ned, I have some bone scars).
I still have some fatigue and I gained 20 lbs on the dex. Doc said that should continue to improve, I'm walking about an hour a day and that seems to help.
So the stereotactic rads seemed to have worked. I will be getting MRIs every 3 months for a while now. I'm still on Keppra and probably will be for another 6 months at least. Hopefully I'll get a break for a while, though it's hard to tell on this roller coaster ride!
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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