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v-ness · 11-18-2009, 09:20 PM

thank you, duga.

i see you're a fellow high oncotype! glad to know someone else "off the charts".

the newspaper is publishing it and a reporter contacted me asking if she can interview me tomorrow. ironically enough, i have chemo tomorrow, so i have to speak with her after 5 hours at the hospital - exhausted with chemo brain. i will have a hard time being articulate so i wrote myself notes tonight. i'm all nervous!

i hope the college paper publishes the letter because the young need to know how to do breast exams and know that they can save your life. i think i'll also write the alumnae magazine (i'm a smith alum). no one should buy into this lunacy and even if the task force isn't interested in 'individuals', the public is.

valerie

11-18-2009, 09:20 PM	#3
v-ness Senior Member Join Date: Nov 2009 Location: western ma Posts: 280	Re: fight the powers that be thank you, duga. i see you're a fellow high oncotype! glad to know someone else "off the charts". the newspaper is publishing it and a reporter contacted me asking if she can interview me tomorrow. ironically enough, i have chemo tomorrow, so i have to speak with her after 5 hours at the hospital - exhausted with chemo brain. i will have a hard time being articulate so i wrote myself notes tonight. i'm all nervous! i hope the college paper publishes the letter because the young need to know how to do breast exams and know that they can save your life. i think i'll also write the alumnae magazine (i'm a smith alum). no one should buy into this lunacy and even if the task force isn't interested in 'individuals', the public is. valerie __________________ 8/09 - IDC 1.8 cm triple positive, lumpectomy left breast 10/09 began chemo (taxotere & carboplatin) and weekly herceptin. 1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010. 2/10 began 7 wks of radiation 6/10 mom dies of primary peritoneal ovarian cancer 8/10 got my last remaining ovary out 10/10 mammogram all clear 3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US needle biopsy proved the largest to be old inflamed cyst -phew! 7/10 switched to Arimidex 8/9 switched to Femara - allergic to arimidex Femara made me lose hair quickly so switched to Aromasin Aromasin made my hair fall out too and the bone pain was too much. back on Tamoxifen 1/2013. blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer. cancer's screwing with another man i love 2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!