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Cathya · 08-25-2012, 08:58 AM

Michele;

I also have osteopenia and just happened to have seen my specialist about this Friday. I have been off both arimidex and actonel since mid 2011 and commented that at the time I started actonel six year plus ago I was happy as it was rumored at that time to stop mets to the bones. She corrected me and said that a much more powerful drug is administered intravenously for that purpose. This I assume is zometa or reclast. So I guess the question is not "is there a drug available?" but "do I need to take this drug?". I was told that given the time I have been NED and given the aggressive nature of my cancer it was unlikely to return if it hadn't already. Perhaps this would be a good question for the Johns Hopkins seminar I just posted?

Cathy

08-25-2012, 08:58 AM	#2
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: zometa or reclast with no mets to bone? Michele; I also have osteopenia and just happened to have seen my specialist about this Friday. I have been off both arimidex and actonel since mid 2011 and commented that at the time I started actonel six year plus ago I was happy as it was rumored at that time to stop mets to the bones. She corrected me and said that a much more powerful drug is administered intravenously for that purpose. This I assume is zometa or reclast. So I guess the question is not "is there a drug available?" but "do I need to take this drug?". I was told that given the time I have been NED and given the aggressive nature of my cancer it was unlikely to return if it hadn't already. Perhaps this would be a good question for the Johns Hopkins seminar I just posted? Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18