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Old 12-28-2013, 12:56 PM   #38
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: ELAINE M - Another member has her wings

Read below if you want a peek into the private life of our dear Elaine. Her friends made a photobook with writings, and here is one of the memories by Elaine's friend who is retired from Catholic Charities with many honors and recognition for her work:


Alice loved teaching English in Fukushima, Japan and English as a second language to her adult students at McKinley Adult School. She was creative and made learning enjoyable for her students. She was a very private person, however, so she did not want to tell the people at work about her breast cancer. She continued working until she became disabled and quit McKinley. I don't think any of her co-workers knew the reason why. That was Alice--private, independent, and wanting to do things her way. No pity, please. She was a fighter who wanted to understand her health conditions and treatments and did not just accept what the doctor said. This led her to her wonderful naturopath, Dr. Jack Burke, who worked with Alice for many years even when she could not pay him for some of the many supplements and treatments that Alice felt were what kept her alive so long. She only asked for help when she REALLY needed it. She was fiercely independent and wanted to do all she could for herself. She greatly appreciated Cindy from Project Dona doing her weekly shopping. I sometimes filled in when Cindy was sick or away, and Alice's list of vegetarian foods from Kokua Market and Down to Earth was always amazing. Alice was one of my oldest friends in Hawaii. We would go out for dinner, or take a drive as well as go shopping. Each year she wanted to celebrate "another year of survival" (as she called it). For many years, she was in a local peace group and worked on issues of peace and justice. Alice finally found good caregivers, Julia and Debbie from Heaven's Helpers. They kept her independent which was her adamant first choice. She was touched by the cards and the phone calls from her workers to check on her when she was in the hospital at the end of her life. She truly wanted to stay in her own place. She never gave up and always fought to come home when her health failed and she was hospitalized so much at the end. What a fighter, our Alice. Betty Lou Larson
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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