HER2 Support Group Forums - View Single Post - ~Too Many Brain Mets To Count~Mighty Oak's Saga Continues...

Believe51 · 06-22-2009, 08:42 PM

Darita, thinking about you today as I too explore brain options for Ed. Please keep me updated on your continued plan, I know you are about due for those scans.

I have been researching brain options for almost 2 years now. If there is anything I can help you with please let me know. The amounts of new treatment options and open clinical trial information I have makes me hopeful...

..that is until I read,

"Innumerable supratentorial and infratentorial brain metastases are seen. The largest measuring approximately 8mm, are in the middle frontal gyrus and in the left cerebellum. There is minimal edema associated with both. A small number of the metastatic foci demonstrate hemosiderin staining. Ventricles are unchanged in size."

"These is osseous metastatic disease in the left parietal calvarium and in the superior cervical spine-the odontoid marrow appears completely replaced by tumor."

Impression: "Interval progression of metastatic disease with innumerable new supratentorial and infratentorial brain metastases which are all subcentimeter in size. In addition, there is metastatic disease burden to the skull and visualized cervical spine."

This report has forced us to explore options that are not conventional. Here is to swimming against the waves. I am praying that we come home with more hope by being able to stay afloat. Wish us luck Sweetheart, we are going to break the rules.>>Believe51

06-22-2009, 08:42 PM	#86
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Darita, thinking about you today as I too explore brain options for Ed. Please keep me updated on your continued plan, I know you are about due for those scans. I have been researching brain options for almost 2 years now. If there is anything I can help you with please let me know. The amounts of new treatment options and open clinical trial information I have makes me hopeful... ..that is until I read, "Innumerable supratentorial and infratentorial brain metastases are seen. The largest measuring approximately 8mm, are in the middle frontal gyrus and in the left cerebellum. There is minimal edema associated with both. A small number of the metastatic foci demonstrate hemosiderin staining. Ventricles are unchanged in size." "These is osseous metastatic disease in the left parietal calvarium and in the superior cervical spine-the odontoid marrow appears completely replaced by tumor." Impression: "Interval progression of metastatic disease with innumerable new supratentorial and infratentorial brain metastases which are all subcentimeter in size. In addition, there is metastatic disease burden to the skull and visualized cervical spine." This report has forced us to explore options that are not conventional. Here is to swimming against the waves. I am praying that we come home with more hope by being able to stay afloat. Wish us luck Sweetheart, we are going to break the rules.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!