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Old 10-29-2007, 11:36 AM   #1
Sandy in Silicon Valley
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Join Date: Aug 2007
Location: Silicon Valley, CA
Posts: 76
Unhappy Acne-like rash around nose and nosebleeds on Tykerb

Hi,

I've been on Tykerb for 4 months straight now, and have had some bad itching, but the acne-like rash on my face has been mild.

Just recently, pimply rash spots have sprung up just under my nostrils, and even immediately inside my nose. These are very annoying, a bit painful, and tend to pop and bleed when I blow my nose, so they aren't healing as well as spots have on my chin and elsewhere on my face.

Has anyone found a remedy that works well for the Tykerb rash, especially in and around the nose? Anyone else experiencing nosebleeds on Tykerb?

I've been using Regenecare, a wound gel containing lidocaine, collagen and aloe, but it doesn't seem to work well inside and just under my nose - maybe it gets rubbed off too quickly when I use tissues (I have seasonal nasal allergies).

It's certainly not a deal-breaker for the treatment, but I'm taking it along with Herceptin, without any chemo, for now, and we're not even sure it's doing any good...

(((hugs)))
Sandy in Silicon Valley
__________________
1992 - age 44/ ER-/PR+ Stage II dx - mastectomy, CAF x 6 cycles; Tamoxifen
1997 - BRCA1 mutation dx'd
1998 - ovaries removed
1999 - off Tamoxifen, on Arimidex
2003 - dx'd Stage IV - lymph nodes & lungs. ER-/PR-/HER2neu+++.
Tx: Herceptin & Taxotere (6 cycles).
2005 - 2.9cm x 3.6cm brain tumor. Craniotomy, CyberKnife. 9 mo. staph aureus infection at incision site - 2nd craniotomy. Two small brain mets CyberKnife'd.
2006 - revisit Xeloda - dosage lowered to 2500mg/day, 5 cycles.
2007 - "spot" dx'd on qtrly brain MRI - same location as CyberKnife 7/05. > by 2-4mm per quarter - - radiation injury or re-growing cancer? Tykerb added to Herceptin - July, still "watching & waiting". Otherwise, fully functional...


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