HER2 Support Group Forums - View Single Post - Working thread - what do you think the HER2+ standard of care should be really?

annettchen · 01-07-2016, 09:04 PM

Just a quick one re brain scans and lymph node involvement... I did not have cnfirmed lymph node involvement (the tisseu thatvwas taken out as sentinel turned out to not be a lymph node at all). It is unclear why / how - theory is that my tumor may have been connected to lymph nodes under the sternum, even though it was located "at the top of" the breast - basically across above the nipple. However, none of those was ever abnormal in any of my CT scans since diagnosis.

Nevertheless here I am with numerous brain mets not even 2 years after MBC diagnosis de novo. I say: You HER2+? Get brain scans. Regularly.

Then again: this topic is now near and dear to my heart...

01-07-2016, 09:04 PM	#12
annettchen Senior Member Join Date: Mar 2014 Posts: 95	Re: Working thread - what do you think the HER2+ standard of care should be really? Just a quick one re brain scans and lymph node involvement... I did not have cnfirmed lymph node involvement (the tisseu thatvwas taken out as sentinel turned out to not be a lymph node at all). It is unclear why / how - theory is that my tumor may have been connected to lymph nodes under the sternum, even though it was located "at the top of" the breast - basically across above the nipple. However, none of those was ever abnormal in any of my CT scans since diagnosis. Nevertheless here I am with numerous brain mets not even 2 years after MBC diagnosis de novo. I say: You HER2+? Get brain scans. Regularly. Then again: this topic is now near and dear to my heart... __________________ Annette ---------------------------------------- 03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic) 04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol) 07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working 10/2014: STABLE! 01/2015: STABLE! 04/2015: STABLE! 08/2015: STABLE! 12/2015: BRAIN METS. BODY STABLE.