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Old 07-15-2010, 03:00 PM   #10
Midwest Alice
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Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
Re: hot off the press--targeted therapy in IBC review article

Leslie, They have many reasons for not giving me Tykerb

onc 1: it will make you sick, bad for you to take if you don't need it, more along that line.
onc 2: There is not any research to say that Tykerb will prolong NED or prevent it from returning after successful treatment with Herceptin. ALSO there is not research to say that an extended time on Herceptin past 2 years Will give you more protection. My feeling is there isn't any research to say staying on Herceptin for 5-10 years Won't give me more protection.

onc 3: My locial onc.. who I love... said.. I go along with the MDAnderson and UI medical school oncs. But... I will keep you on Herceptin because why change something that is working.

I guess we don't know what will work. I am so glad to get on here and learn about all the new research and trials. We just have to stay strong till they come up with the next treatment or a cure.

Love your new picture, Alice
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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