Thread: Need input!
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Old 02-03-2017, 07:31 AM   #77
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 563
Re: Need input!

Hi Tiffany
It's not given in my area of Scotland.
Oncologist said she could apply to "NICE" Med Board for it but she reckons 99% a "No".
I had already said that when I progressed I wanted TDM1 & expected a fight to get! The trial is with TDM1 & an immuno drug or placebo. So would get TDM1 regardless. It's the only way to get drug so a no brainier.

The immuno drug would hopefully be a bonus - although I am told it can have "strange side effects" (Oncologists comment)so think it might be obvious if you are getting it.

The only other option mentioned was AI's but Doctor pointed out "you have already failed on Femara." Now I have failed on Xeloda and Herceptin with Zometa.
I realise that scans are not infallible but I have had a few things missed so don't have much trust. Tumour is 2.5 cm in under 12 weeks!
Trial requires tumour testing & scans again to get on it & then frequent testing during it.
If not for this trial I don't think I would have great options for next treatment so I have got to get on it!!
Off all treatment for next 3 weeks. A bit worrying!
juls
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