Thread: Very nervous
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Old 10-26-2011, 03:32 PM   #16
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
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Re: Very nervous

Stay on the "why NOT me" thought. Funny, I just sent a memo to my department managers telling them they had to have their 2012 Goals submitted by November 9 - and everyone is freaking out that it is so little time! Different world...

But, I think if you have the appt with the surgeon set on Nov 2, push to see your oncologist earlier than the 9th. You could also, assuming that you get the all-clear for chemo, have them schedule it now - it can always be canceled if necessary. I don't see any reason why you would need to wait for the appt with the onc, then at that point be "oh, now lets think about scheduling the chemo".

Keep in mind tho, you are right now NED! And you do need your liver to be as healthy as possible to process the chemo safely. As Becky said, everyone is rightly concerned that you be READY.

Think....cured!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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