Thread: Very nervous
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Old 10-25-2011, 05:46 PM   #4
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Re: Very nervous

Dear Cool Breeze,
I encourage you to be a pain in the butt and push for what your heart is telling you. Call the Surgeon's office and get on a cancelation list. Explain to them that his inability to see you is slowing down further treatment. You know your body and it sounds like you are doing very well.

Next, call your onc and get an appointment for the day following the appt with the surgeon.

It is OK to fight and be demanding for what you know is best for you.

The ONLY time I haven't pushed the envelope was after my surgery. I really wish I had. So don't have regrets on this.

Sending support and a little encouragement....Lori

Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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