HER2 Support Group Forums - View Single Post - Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!

agness · 11-09-2015, 06:22 PM

I wore Penguin Cold Caps (basically super-chilled ice pack bonnets) and I had some loss and shedding that continued for a couple months after my last dose of chemo but I alway had hair. It was worst around the edges of my scalp but I think getting extra strips they call brow bands would help with that.

I put my feet, in socks, into ziplock bags and then into a basin of ice each infusion. I had no issues with toenail damage or neuropathy. I would hold a metal water bottle filled with ice and water as well, but probably not as much as I should have. Again, no nail or nerve issues.

I was also taking a lot of Chinese herbs and targeted nutritional support during and after treatment that might have helped.

11-09-2015, 06:22 PM	#5
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated! I wore Penguin Cold Caps (basically super-chilled ice pack bonnets) and I had some loss and shedding that continued for a couple months after my last dose of chemo but I alway had hair. It was worst around the edges of my scalp but I think getting extra strips they call brow bands would help with that. I put my feet, in socks, into ziplock bags and then into a basin of ice each infusion. I had no issues with toenail damage or neuropathy. I would hold a metal water bottle filled with ice and water as well, but probably not as much as I should have. Again, no nail or nerve issues. I was also taking a lot of Chinese herbs and targeted nutritional support during and after treatment that might have helped. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.