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IBC on the rise?
I have IBC, er-pr- her2+++ Stage 3c and was diagnosed almost 4 years ago (Feb 10th will be my anniversary). I was given a very poor prognosis and assumed I had maybe 2 years. Stats are just the, STATS. They never take into account all the factors in our lives. For those of you out there with IBC, hold on tightly, things are changing, and I beleive your chances are better than those stats. My cancer has not metastizied to date and I have been on Tykerb/ Xeloda since March. That could all change soon, but there are many more options. Have faith, pray alot, and be so very grateful for every sunset and sunrise, for the love of those around you. I will be praying for you....hang in there and don't let go.......Love, Vickie
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Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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