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Well hell. You know that I hate this is the latest 'news' for Ed... and for YOU.
I just this morning faxed 7 pages of detailed info my onc asked for at yest. appt. These meds are what we are looking to add in some fasion ASAP to try and control my own brain mets. They continue to grow, but slowly. Yet, he said: "at this point even if your brainstem lesion grew marginally, it could cause real trouble and symptoms right now." It will be seven years of brain mets in Sept.... that is pretty scary if I think too much.
I will be more than happy (not such a great word under circumstances) to send you any kind of info you might want. Names and /or details.
And here I sit, still keeping WBR as a very last option. call me chicken, stupid....... you'd probably be right.
Bless that ED. I've used those same words... as that's all we really can do while the river keeps on flowing.
Still hoping and wishing,
XOXOX patty
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