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I have a related question. My oncologist wants me on herceptin forever; or as long as responding no problems; you ladies obviously know the lingo. I was wondering how many other people are in this situation (stage IV IBC, bone and liver mets; currently NED). I'm feeling a bit whimpy lately 'cause I'm whining about herceptin side effects which are nothing compared to chemo. Does it get better over time? Glad to hear you ladies are doing so well on it for long term! I have to say I had never heard the concern with herceptin causing brain mets. I did meet a women who was stage II, and after she stopped herceptin she developed brain mets and went back on herceptin along with chemo to treat the brain mets. Also wondering what are the differences between herceptin and tykerb?
hugs from a cancer newby - almost 1 year survivor! Look forward to the day I can say 5/10/15 years and so on!
jessi
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