Thread: 8 Years
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Old 02-21-2017, 03:25 PM   #12
Estelle
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Join Date: Nov 2009
Posts: 72
Re: 8 Years

Hi Estelle -- eefreeman99! Its really unusual to meet someone with our name! I wish you all the best! Walking the Avon is a good way to stay motivated, and when needed, distracted. You will meet many warriors and really feel empowered by so many strong women! My walk is in May - started training last week. I will check back from time to time to see how you are doing. Re neuropathy -- don't know where you are located but there are several clinical trials. I wasn't successful but some seem to work better when done closer in time to when the nerves were damaged. My first treatments were some years after I finished taxol. If you go to clinical trial.gov, and put in CIPN (chemotherapy induced peripheral neuropathy), you will get a list of trials and you may find something that works for you. Good luck!Hi Estelle -- Its really unusual to meet someone with my name! I wish you all the best! Walking the Avon is a good way to stay motivated, and when needed, distracted. You will meet many warriors and really feel empowered by so many strong women! My walk is in May - started training last week. I will check back from time to time to see how you are doing. Re neuropathy -- don't know where you are located but there are several clinical trials. I wasn't successful but some seem to work better when done closer in time to when the nerves were damaged. My first treatments were some years after I finished taxol. If you go to clinical trial.gov, and put in CIPN (chemotherapy induced peripheral neuropathy), you will get a list of trials and you may find something that works for you. Good luck!
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Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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