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Approaching 5 yr cancerversary but running out of options
I was admitted to hospital due to severe shortness of breath. After 1.5 liter fluid was drained from my right lung, my oxygen level still didn't come up. The oncologist who was covering for my Onco came this morning to the hospital. He said more drainage won't solve the problem because the problems are in my lungs. The nodules that have been progressing are make me breathless. He also said since I have been on so many chemos already, revisiting some of them won't do me any good as I progressed on them and although they were to treat skin mets. If we don't find the right drug, he is giving me a few more months.
The news was very shocking! I went from climbing mountain in Alaska in May, traveling 10 hrs to China in November to being confined all of a sudden to oxygen machine! I am very scared! I'm hoping my doctor will let me revisit some of the old chemo I used to buy m some time! But I can't even function without an oxygen machine does this mean the end of world for me?
We have just lost Karen who is as just texting me in November, encouraging me and all of a sudden she is no longer here. I still have her messages on my phone. It's just so unreal!
Should I fight should I just accept the fact and live the rest of my days comfortably? I feel bad for my daughter. She will be fine I know but I'll miss her very much. What shall I do? Going to chemo with my oxygen tank is it possible?
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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