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Old 06-08-2017, 12:34 AM   #14
Lani
Senior Member
 
Join Date: Mar 2006
Posts: 4,778
Re: Good and Bad News

Most worrisome is Riccardo Soffietti, MD's warning that having had TDM1 before, during (worst) or after radiation therapy increases the risk of radio- necrosis with radiation therapy (srs or wbr) . His talk is available on video.

I would recommend listening to /reading all 3 talks and then seeking out one of these knowledgeable persons or someone who only treats bc brain mets by radiation therapy to get counseled on your most difficult decision. Any chance you could try neratinib or other trial related medications?

Best luck with your decision
Lani
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