HER2 Support Group Forums - View Single Post - What can we do about the delay of TDM-1

ElaineM · 09-07-2010, 10:24 AM

Thanks Brenda and Chrisy. I am going to start composing a letter this week. Are we also going to start a general petition for everyone to sign? I hope Chrisy or another representative can be our media contact. I applaud your efforts Brenda. I am looking forward to reading your interview in Cure. I signed up for a free subscription, so I get that regularly.
I agree Brenda. It seems silly for researchers and authorities to say targeted drugs are the future of cancer treatment and then try to stop promising targeted therapies from getting to the people who need them makes me wonder what are they really doing or saying? I thought the news about Avastin was bad enough. Slowing down T DM1 on top of that is unacceptable. I hate to make this a gender thing, but does the FDA have something against women with breast cancer? Maybe we should find some men who are Her2 positive to write some letters too. By the way, during my own personal research I found her 2 is not limited to breast cancer. I read It can affect other cancers too, but I have not researched that further, because I am trying to learn all I can about breast cancer and I have limited time.
By the way, if you go to the pipl link I included previously you will find Lilly Tartikoff. I tried it. It works. It should be easy enough to find Dr. Slamon's contact information. Do you think we should contact the editor of Cure Magazine? Do you think Cure could do an article about the FDA activities and/or TDM1?

09-07-2010, 10:24 AM	#41
ElaineM Senior Member Join Date: May 2006 Posts: 3,142	Re: What can we do about the delay of TDM-1 Thanks Brenda and Chrisy. I am going to start composing a letter this week. Are we also going to start a general petition for everyone to sign? I hope Chrisy or another representative can be our media contact. I applaud your efforts Brenda. I am looking forward to reading your interview in Cure. I signed up for a free subscription, so I get that regularly. I agree Brenda. It seems silly for researchers and authorities to say targeted drugs are the future of cancer treatment and then try to stop promising targeted therapies from getting to the people who need them makes me wonder what are they really doing or saying? I thought the news about Avastin was bad enough. Slowing down T DM1 on top of that is unacceptable. I hate to make this a gender thing, but does the FDA have something against women with breast cancer? Maybe we should find some men who are Her2 positive to write some letters too. By the way, during my own personal research I found her 2 is not limited to breast cancer. I read It can affect other cancers too, but I have not researched that further, because I am trying to learn all I can about breast cancer and I have limited time. By the way, if you go to the pipl link I included previously you will find Lilly Tartikoff. I tried it. It works. It should be easy enough to find Dr. Slamon's contact information. Do you think we should contact the editor of Cure Magazine? Do you think Cure could do an article about the FDA activities and/or TDM1? __________________ Peace, ElaineM 12 years and counting http://her2support.org/vbulletin/showthread.php?t=48247 Lucky 13 !! I hope so !!!!!! http://her2support.org/vbulletin/showthread.php?t=52807 14 Year Survivor http://her2support.org/vbulletin/showthread.php?t=57053 "You never know how strong you are until being strong is the only choice you have." author unknown Shared by a multiple myeloma survivor.