HER2 Support Group Forums - View Single Post - Tip Toe & Tex - revised schedule of mid-June

Andrea Barnett Budin · 07-02-2008, 03:46 PM

So -- Kathy's bro is leaving on August 20, which means Tiptoe and her gang need to arrive with plenty of slack time before then.

Therefore, skip me for late August (going to the beach anyway). Sounds like Marie needs to also be moved. And Pink will send the group to Kathy's bro in plenty of time that way.

Thinking out loud, kind of, here...

Re JOANNE. As far as I know she is still recuperating. Not ready to face the board yet. So unless you know something I don't, Joanne may need to pass for now. Much going on in her life and she is trying her darnedest to get her footing, last I heard.

Steph, you are the best GROUP LEADER ever!! Kudos to you, your organizational skills, your humor, your patience and sweet nature! Bravo!

Andi

07-02-2008, 03:46 PM	#12
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Getting Up To Speed So -- Kathy's bro is leaving on August 20, which means Tiptoe and her gang need to arrive with plenty of slack time before then. Therefore, skip me for late August (going to the beach anyway). Sounds like Marie needs to also be moved. And Pink will send the group to Kathy's bro in plenty of time that way. Thinking out loud, kind of, here... Re JOANNE. As far as I know she is still recuperating. Not ready to face the board yet. So unless you know something I don't, Joanne may need to pass for now. Much going on in her life and she is trying her darnedest to get her footing, last I heard. Steph, you are the best GROUP LEADER ever!! Kudos to you, your organizational skills, your humor, your patience and sweet nature! Bravo! Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...