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Old 10-25-2006, 05:54 AM   #8
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
It is my understanding that one does not have to have IBC to have skin mets or skin involvement. I have met those in my oncology who were not IBC and they were being treated for skin mets. I hope this helps. Again, keep in mind IBC is always staged at 3b and if it has spread to bone or organ it is stage 4. It may start our of IDC and following surgery changes to IBC. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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