HER2 Support Group Forums - View Single Post - tamoxifen with frequent menses, recomending hysterectomy.

Jackie07 · 03-19-2015, 12:42 AM

Hi,

You've been through a lot the past 15 months. The suggestion of another surgery must be overwhelming.

I underwent total hysterectomy 5 years ago after another family member had been treated for a Lynch Syndrome - related cancer. Everything has been fine so far. The decision was based on personal/family cancer history and the BRCA gene test result - I was at pretty high risk of getting other cancers of the reproductive organs.

I used to drink a lot of milk. Now I have just a cup of milk for the oatmeal in the morning. There are walnuts, raisins, bananas, oranges, strawberries, blue berries, and almost a cup of yogurt in the huge bowl. I don't really walk much except around the house, but I would tap my feet while sitting in front of the computer (supposed to help build up bones.)

O and the flax seeds.

I am guessing your Estrogen Receptor number is pretty high, so it's important to block the estrogen in your body. That can only be achieved by switching to an A.I. as Tamoxifen only blocks the estrogen in the breast.

I had experienced a lot of UTI's and was eventually prescribed an antibiotic capsule (Nitrofurentine) to be taken right after being intimate. That (plus KY Jelly) has helped quite a bit. You and your husband will need to communicate well on this part.

Hope this helps.

03-19-2015, 12:42 AM	#2
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: tamoxifen with frequent menses, recomending hysterectomy. Hi, You've been through a lot the past 15 months. The suggestion of another surgery must be overwhelming. I underwent total hysterectomy 5 years ago after another family member had been treated for a Lynch Syndrome - related cancer. Everything has been fine so far. The decision was based on personal/family cancer history and the BRCA gene test result - I was at pretty high risk of getting other cancers of the reproductive organs. I used to drink a lot of milk. Now I have just a cup of milk for the oatmeal in the morning. There are walnuts, raisins, bananas, oranges, strawberries, blue berries, and almost a cup of yogurt in the huge bowl. I don't really walk much except around the house, but I would tap my feet while sitting in front of the computer (supposed to help build up bones.) O and the flax seeds. I am guessing your Estrogen Receptor number is pretty high, so it's important to block the estrogen in your body. That can only be achieved by switching to an A.I. as Tamoxifen only blocks the estrogen in the breast. I had experienced a lot of UTI's and was eventually prescribed an antibiotic capsule (Nitrofurentine) to be taken right after being intimate. That (plus KY Jelly) has helped quite a bit. You and your husband will need to communicate well on this part. Hope this helps. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 03-19-2015 at 12:51 AM.. Reason: Add details.