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Old 08-22-2009, 11:16 PM   #3
pattyz
Senior Member
 
Join Date: Mar 2006
Posts: 306
Re: Update: Spinal Fluid me with LEPTO!

Well MS Steph,

If you know something or some one to ask, or a place to look for solid info...PLEASE DO SHARE !!! As I have NOT researched the Lepto at ALL!!! Didn;t want to ofcourse. Didn't want to get it either!!!

I have crumbled in a heap as of June 6th w/ ER and first hospital stay, yet going bad since April (scipped May for some reason? Did a TON of outside work and loved every bit, til the day I crashed on the 30th).

Headaches and gushing vomiting, together and alone from early April thru July and part of Aug.

I HAD to GO straight to my Onc with this one. I was able to understand all he said and suggested; was right there with him in reasoning, testing, meds, the two diff delivery systems...all of it. BUT it was all in his hands this time. The only parts from me: the Power Port put in and some small amount of decision of what to use as treatment and the schedule of it.

He is still looking at Avastin, of which I have had just one infusion before we KNEW it had gone Lepto.........
ANYONE IS FREE TO STEP IN HERE! HOPING FOR THAT, HA!

I think I'm still a black sheep, 'tho.......my fault.

Thank you for still keeping an eye out and replying so quickly, Steph.
Love and hugs,
XOXOXOXOXOpatty

Last edited by pattyz; 08-22-2009 at 11:21 PM.. Reason: emphesis
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