HER2 Support Group Forums - View Single Post - Hello-update

Joan M · 12-04-2009, 05:40 PM

Barb,

I relate to what you're saying. The idea of brain surgery was also very scary to me. I remember going into the operating room in the early am thinking, I don't believe this is happening.

But, as it turned out, out of of three major advanced bc surgeries I've had (which includes the two lung surgeries), the brain surgery was the easiest.

I had the least discomfort. The decadron for five weeks really started to bother me, but then discomfort from that went away after weening off the steroid.

You're in my prayers for a successful surgery and speedy recovery.

Hugs,

Joan

12-04-2009, 05:40 PM	#18
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: Hello-update Barb, I relate to what you're saying. The idea of brain surgery was also very scary to me. I remember going into the operating room in the early am thinking, I don't believe this is happening. But, as it turned out, out of of three major advanced bc surgeries I've had (which includes the two lung surgeries), the brain surgery was the easiest. I had the least discomfort. The decadron for five weeks really started to bother me, but then discomfort from that went away after weening off the steroid. You're in my prayers for a successful surgery and speedy recovery. Hugs, Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!