Thread: Five years on
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Old 12-12-2011, 07:22 PM   #4
Cannon
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Join Date: Oct 2007
Posts: 203
Re: Five years on

More good news to share - I am five years out also. Haven't been on the boards for a while, and want to remind newbies that many of us go away because things got better.

It seems like yesterday, or a lifetime ago. I was glad to see the news that Femarra performed well in 5-year tests, as that's what I have been on.

Meanwhile, my younger son is a senior in high school and my older son (with autism) is doing well. My sister had a baby (her 1st, at age 43) and I have a fabulous new nephew. Sixteen members of our family went on a week long Mediterranean cruise in August.

I have had complications from my Crohn's disease, and been in the hospital twice this year for that. I have found the chronic illness more challenging in many ways than the cancer. But on and on we go.

Best to all,
Rebecca
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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