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Old 05-06-2009, 01:50 PM   #11
jml
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Join Date: Dec 2006
Posts: 415
Hi Steph~
Still inspired, motivated and encouraged by you, your outlook & your example.
You were one of my 1st confidantes here, when I was dx'd 7 years ago. You & Lolly -i still miss her - & so many others have encouraged me during the scary, uncertain times & helped me find my fight & my focus when I thought I couldn't any more. Until I found this community, I had yet to meet anyone "like me" - Stage IV, surviving. Here I found you & others like US, not just surviving, but THRIVING in the face of this disease.
We are changing the face of the Stage IV Survivor. And any positive response to treatment, how ever long, is a victory for all of us.
May you & NED continue on your journey together, far & long, until Cancerland is nothing but a tiny, blurry blip on the map of your adventures through this crazy Life!

Hugs to you,

Jessica

ps-we will still expect to see you here, with or without Vit H!

Dx - 5/17/2002 @33yo ;Stage IV - IDC + liver met;Lumpectomy, 12/12+nodes; er/pr-, Her2+++
Tx1 - Navelbine+Herceptin x 8 wks; No response, progression - single liver met to "innumerable/immeasureable"
Tx2 - ISIS 2504 - clinical trial x 6mos.Taxol + ISIS (continuous IV);partial response.
Tx3 - Taxol+Herceptin x 13 weeks; NED
NED 9/11/03-9/17/04, then single liver met recurrence.
9/04-Recurrence 1- Taxol+Herceptin x 4 weeks prior to RFA, but NED again, cxl RFA.
12/04 -Recurrence 2 - single liver met
1/05 - RFA - partial response
2/05 - Tx4 -Abraxane+Herceptin x 9 weeks;No response due to improper dosing(?)
3/05 - Tx5-Taxol/Carbo/Herceptin to NED again.
11/05 - Recurrence 3 - same single liver met
12/05 - Right hepatectomy-55% liver removed. Success. NED in liver ever since.
2/06 - Recurrence 4 -single lesion in L breast again
3/06 -excisional biopsy. 1cm IDC, extensive high grade DCIS.
No tx due to liver still healing post hepatectomy, follow with Herceptin & scans to keep an eye on DCIS
12/06- L mastectomy w/ reconstruction 3/07 & 8/07
10/07 - Recurrence 5 - Supraclav nodes
10/07-2/08 -Tx6 -Gemzar+Herceptin, til NED 3/08.
9/08 -Recurrence 6 -Supraclav nodes again.Rads1 - x 7wks
10/08 - Acute Renal Failure - ICU x4 days, hospital 1 week, stents in ureters/kidneys x 4mos.still no known cause???
10/08 - Recurrence 7 -Sternal nodes; but supraclav -NED
10/08-3/09-Tx7- repeat Gemzar+Herceptin; NED in 1/09; finish GH cycle to 3/09.
105 chemo infusions to date!
4/09 - PET scans shows Recurrence 8 in sternal nodes...progression while on GH cycle.
5/09 - Now what? Tykerb/Xeloda/Herceptin...still deciding.

Last edited by jml; 05-06-2009 at 05:55 PM.. Reason: typos
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