HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

kat in the delta · 10-20-2007, 12:33 AM

I had a masc. in Apr. of 2005. and I am in PAIN.... my new Onc. said my chest was very tight...,my New Onc also asked me if I had been doing my EXERCISES,,?? ,( no one told me to do Exercise for chest..) Anyway. after going to the cardiologist to check out my Heart..&if it was O.K., he said HE was sending me for some physical therapy....
Remind your Spanish Onc. to test your Heart every 3 months while you are taking HERCEPTIN. You do NOT want it to fall below 50. (LVentricle output or Input "score"). Have you all had a genetic test ??
Anyone hear of the gene Topel or Topell...only 8% of HER2+ have it. I do not know if that is good or bad... rsvp,
kat in the delta

10-20-2007, 12:33 AM	#319
kat in the delta Senior Member Join Date: Apr 2006 Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt. Posts: 224	Kat in the Delta I had a masc. in Apr. of 2005. and I am in PAIN.... my new Onc. said my chest was very tight...,my New Onc also asked me if I had been doing my EXERCISES,,?? ,( no one told me to do Exercise for chest..) Anyway. after going to the cardiologist to check out my Heart..&if it was O.K., he said HE was sending me for some physical therapy.... Remind your Spanish Onc. to test your Heart every 3 months while you are taking HERCEPTIN. You do NOT want it to fall below 50. (LVentricle output or Input "score"). Have you all had a genetic test ?? Anyone hear of the gene Topel or Topell...only 8% of HER2+ have it. I do not know if that is good or bad... rsvp, kat in the delta