View Single Post
Old 12-03-2008, 12:28 PM   #25
Darlene Denise
Senior Member
 
Darlene Denise's Avatar
 
Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
MJ: We all know and feel your fears. The "cancer coaster" never lets you off and is one scary ride. Everyone with Her2 and mets is all too familar with the fear of brain mets. Unfortunately, my brain met with mets the end of August. Scary, sucky stuff!! I highly unrecommed getting them.

Anyway, I am compelled to post that no symptom, no matter how small, should be discounted when it comes to brain mets, especially for us Her2 gals. The key to the best treatment options is catching them while small in number and volume. If you do have them, you will only help your circumstances by getting them as early as possible. I recently visited Dana Farber Cancer Center and the onc inquired how it came to be that they were dx so early. Vigilance and reconigzing the high risk in the HER2 population is what kept me on top of it.

An anti-anxiety drug like xanx or atavan might be of help to you while you get through this. I try to never take them, but when facing this situation, I do.

I have had several "nothing there" Brain MRIs and the good news and relief is so worth going through the "scanxiety." You will be nothing but anxious while you wait it out, so, I say, go get that sucker over with and get some good news to enjoy over the holidays!!

Fear makes us weak and alone which doesn't do anything to help us battle on. Trade it for your faith; strength and those who love you will help you keep up the constant battle we always will have in our lives.

Sending you all of my good vibes and best wishes for only good news!!

LOL

Darlene in Virginia Beach
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
Darlene Denise is offline   Reply With Quote