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Old 10-17-2007, 06:23 AM   #30
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
On the issue of the benefit of detecting mets early:

Just a quick word I agree with Brenda, many guidelines are obsolete. And I agree with AA about asking the right questions.

Debbie it took nearly 20 years for scientists to prove that smoking was linked to lung cancer..some said it was even good for you! It is not because it is not proven that it is not a fact. I am sure that those that got the lung cancer when it was not proven and felt that it was due to their smoking would not have liked to be told in a very patronising way that they were just being silly to think that because it has not be proven..

On this site beware that you are talking to many people that are at the front line of dealing with mets or at high risk of recurrence and we know what artilleries has worked for us. To us that is what matters because we are quite simply talking about our lives and survival these are not "anecdotal" tales to us.

Just like intuitively people thought that inhaling some smoke may no be good for you. I intuitively know that detecting tumours when small will improve my survival for all the reasons mentioned above. Further more you will have less chance to have created another strain within your tumour that will eventually resist any treatment (besides the stem cell theory). As a stage 4 I do not have 10 years to wait for the new official review/studies.

If all we had to do was to read guidelines there would be no need for this site exept for the emotional aspect.

[Sorry for my reactive way of writing but this is your type of attitude Debbie very dismissive that nearly took me to an early grave. This is because I was unconventional and requested a scan+other stuff that I am now NED]
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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