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Old 11-02-2015, 09:22 PM   #4
Dakini52
Senior Member
 
Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: MM302 Anyone watching this trial?

I am in the Seattle area and during my treatment and appt with my on last week he mentioned that beyond TDM1, there are 4 other trials that are going on. Apparently Swedish Hospital is having trouble finding people to participate in the trials. The oncology group that I am a part of has no one who has even gone so far as to be on TDM1. We are all still maintaining on Herceptin. I guess that makes us some of the more fortunate ones, however, I wonder about these trials and the people out there who could be benefiting from them. I should have asked more about the trials and will do so the next time I see Dr Lee. For those of you in the area, please be aware that if you are struggling with your current treatment, there are more options out there for you possibly.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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