HER2 Support Group Forums - View Single Post - Slamon et al trial results: TH very effective and equivalent to TCH in Stage IV her2+

Andrea Barnett Budin · 07-16-2013, 02:24 PM

YES!!! I ditto what Linn just posted.

And I too -- allllll these many yrs later -- what to know details.

I DO know that I got a loading dose of H.

H was approved by the FDA, fast-tracked out of clinical trials, SEPTEMEBER 28, 1998. I was dx in Aug of '98.

I knew about HER2 -- and I asked to be tested, when "I" discovered my metastasis!!

When I would ask questions about H, doc would tell me, WE DON'T KNOW. THERE ARE NO STUDIES. "YOU" ARE IN UNCHARTERED WATERS. THEY WILL BE WRITING ABOUT YOU...

My Inner Voice told me to go w/H...

Lani, Jackie -- propeller heads that we love -- please dummy it down for us. We're just muddling through all that lingo -- skipping to CONCLUSION/RESULT... and still feel a bit lost... Thanks all!

07-16-2013, 02:24 PM	#16
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Slamon et al trial results: TH very effective and equivalent to TCH in Stage IV h YES!!! I ditto what Linn just posted. And I too -- allllll these many yrs later -- what to know details. I DO know that I got a loading dose of H. H was approved by the FDA, fast-tracked out of clinical trials, SEPTEMEBER 28, 1998. I was dx in Aug of '98. I knew about HER2 -- and I asked to be tested, when "I" discovered my metastasis!! When I would ask questions about H, doc would tell me, WE DON'T KNOW. THERE ARE NO STUDIES. "YOU" ARE IN UNCHARTERED WATERS. THEY WILL BE WRITING ABOUT YOU... My Inner Voice told me to go w/H... Lani, Jackie -- propeller heads that we love -- please dummy it down for us. We're just muddling through all that lingo -- skipping to CONCLUSION/RESULT... and still feel a bit lost... Thanks all! __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...