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Re: Brain Mets came back -- Help Needed
Hi Grace,
I became metastatic in November with four mets to my brain! (happy 50th birthday to me!) After wbr I was put on Xeloda/Tykerb/Herceptin and contine that regimin still. My onc also feels that over with chemo drugs is not a good thing, but this was the protocol she recommended after the dx. I often wonder if I had stayed on Herceptin if the cancer wouldn't have metastisized. I'll never know now. Now I pray that they can control/freeze what is there. After wbr a scan showed the tumors had significantly decreased in size and I'm wondering if gamma knife or targeted radiotherapy would be an option. When first diagnosed they said it would not be beneficial because the tumors (4) are in four separate places, not near eachother. so we just let them sit there? Doesn't make sense to me.
Good luck to you. I pray things remain stable.
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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