HER2 Support Group Forums - View Single Post - Time for a change

chrisy · 05-31-2009, 09:59 PM

Carolyn,
Sorry you are having to once again come up with a new strategy - it sounds like you have a wonderful doctor, one who is on the cutting edge and that is so important these days. There are new possibilities and reasons for hope every day. I know you'll let us know what your new plan is.

I really wanted to respond to the subject line of your post - out on the ledge. I think many of us can relate to this feeling. Every time we have a setback, we find ourselves peeking over the edge into the abyss. It is so scary, yet we do it over and over again (what choice to we have!?) then gather up the hope and power, stand up and step back away from the cliff.

I think it's very healthy to "forget" how dark the valley is. We are not meant to LIVE in those dark places, although you are right - we have to walk through them. And of course, we do not walk through them alone...

05-31-2009, 09:59 PM	#20
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Carolyn, Sorry you are having to once again come up with a new strategy - it sounds like you have a wonderful doctor, one who is on the cutting edge and that is so important these days. There are new possibilities and reasons for hope every day. I know you'll let us know what your new plan is. I really wanted to respond to the subject line of your post - out on the ledge. I think many of us can relate to this feeling. Every time we have a setback, we find ourselves peeking over the edge into the abyss. It is so scary, yet we do it over and over again (what choice to we have!?) then gather up the hope and power, stand up and step back away from the cliff. I think it's very healthy to "forget" how dark the valley is. We are not meant to LIVE in those dark places, although you are right - we have to walk through them. And of course, we do not walk through them alone... __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure