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Old 01-07-2012, 05:51 PM   #17
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Re: I could really use some input

Deena,
Responding to your question about insurance denial. I recently successfully worked through this process.

First, your Dr. has to be on board with the approach. My Onc wrote a page and a half letter about my history, quoted a study and submitted it to my insurance.

It only took 2 weeks for approval...but here is the catch. (there is always one when talking paper, paper more paper)

I HAD to be involved every single day. I followed up with the insurance to make sure I had the right FAX (we didn't), I called insurance to make sure they showed evidence of receiving the FAX (they hadn't).

My insurance has an emergency review process. So make sure that you are in that process to expedite the decision.

I was approved for Herceptin + Tykerb (darn diarrea causer...I hate it) + Abraxane.

We all know that this is one of the toughest moments in this jouruney. The uncertainty is very stressful.

Hang in there!! You can be successful with an appeal to insurance. And it may not take a month.

Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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