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Old 05-27-2015, 07:08 AM   #20
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: boyfriend d/x with stage 4 cancer

thank you, everyone, for your responses. i only just came back after 2 months away. i appreciate everyone's thoughts. i am a loner in real life, and just wanted the kind of hope i found when i got diagnosed back in 2009. jon, in the meantime, had 1/3 of his colon removed at brigham & women's and started his chemo a month ago, adding Avastin in next week. his liver is littered with small mets and has one that is 8 cm in size. that said, he has only had small times of fatigue each chemo, rejoined CrossFit on sunday and bought hiking boots on monday! he is not in denial, he is living life with open arms and plenty of hope. i told him i'd have to induct him into the 10% club (10% of us have little to no SE's from chemo). although we should have been in italy the past 10 days, we cling to the hope that it will come true next may. he brought me calla lilies like those that grow wild in Cinque Terre for my birthday last week and healing Herkimer Diamond crystal ring while he carries a bigger on his key chain. he's never been religious, but now carries a st. peregrine medal i gave him, a little cross from medjugorje, and prays to st. jude. funny how you pull out all the stops when you're life is in danger.

i have courtney leboeuf's book here to read and to quote to jon since she was a powerhouse of hope.

valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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