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Old 11-11-2010, 10:49 PM   #5
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Grieving already

Biddy,

[How do cope when your world is turned upside down?]

This was similar to the question my husband asked Oncologist#2 when I was diagnosed with secondary cancer in my liver. Although it was hard to believe at the time, her answer was both wise and true: "You just do".

That was a terrible time for both of us, as it is for you and your sister now. I am starting to cry right now as I write this and I'm not sure if it is for you and your sister, or me and mine. Probably both.

I agree with all the responses so far, and am sure you will hear from many others who have walked that path.

It's natural to grieve - you may feel that you and Kelly's dreams of the future have been stolen from you. That may or may not be true, but you will definitely have a different awareness and reverence for life.

But do not lose heart. You do not know what the future holds! True, science is running very fast and I believe the answers are nearly within reach. In the meantime, doctors are beginning to look at this as a chronic disease that can be managed, sometimes for a long time. True, there is not yet a "cure" but even if not curable, it is treatable. I know several who I believe ARE in fact cured of liver mets, it just isn't proven.

My advice for how to live in the moment and enjoy the "time left" with Kelly is this:

First, remember that you do not know what the future holds, or how long that future will be.

Second, (this really helped me, but then I am a little twisted) think about how stupid you'll feel 20 years from now - with Kelly still right there with you - if you've wasted it all worrying about death!

You just have to take it as it comes. One step at a time, breathe in breathe out. Appreciate every day for what it is.

And just love her.

chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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