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Old 01-22-2014, 12:35 PM   #15
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: New Oncologoist needed - Final Straw

My doctor's office just called....Nurse Ratchet and she said the doctor left a hand written note that you are post menapausel and he is taking you off the Tamox today and they will call in a prescription for Arimidex starting tonight. Then she faxed me a blood test for FSH, Lutanizing hormone and the Estradro level in two months to do.

Now, this all makes me uncomfortable;

1st the doctor said I was too young to be in post-menapausel he thought and only ordered these tests when I asked him too. And told him that the Tamox might be crosstalking and doing me more harm then good. As I stated previously he acted like that was only in rats and mice 15 years ago and it is not accurate. I pushed him and said from what I read it is very possible because of my ER30 going to ER73. He tired to blow me off again....Then I said you know my path report was not good after all my treatments were done, I asked for Perjeta at the start of treatment and today would I get Projeta??? His answer absolutely, and I said I wanted it then and he said NOWAY I coudl have got it, but I don't believe him. Then, I said I want to be proactive if possible because I want to live.

I think he ordered the tests just to suffice me and then all the trouble in getting my results. When I read it I thought, "Wow, I am right I am post-men. However, I thought maybe I don't understand it correctly.

Now, I think OMG I am not a doctor, and I can not be in charge of my own treatment. The part that I am afraid of is what Jackie07 said and what if the test is inaccurate, and I deplete all my hormones and make everything worse. Did he just change me because I said I wanted to and maybe my feet and hands wouldn't hurt, maybe no cross talk, and I should be on an AI if post-menapausel.

Now, I don't know what to trust, and I hope I am doing the right thing. Geez, this sucks!! Because what in 2 mos if my tests say I am pre-menapause then what back to Tamox??? I am confused......ugh
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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