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chrisy · 05-08-2008, 04:14 PM

Krista, the issue was that Joe, and especially Christine, did not wish to have that be part of this site - and that she personally would not want to be remembered that way. I'm not trying to put words in anyone's mouth, that's just what I remember about the discussion.

In the end, we have to remember that we are guests here in Joe and Christine's home - and respect their feelings about what kind of place it is. I notice Joe has not chimed in on this thread, so I don't know what their feelings are now - as I said, I don't want to put words in anyones mouth.

Speaking for myself, I believe it is important to come together, cry, say goodbye, share our favorite memories of our beloved friends who have left us. In real life, we do that at a memorial service. This is why I suggested an online chat might be a good alternative. As for remembering, I will always have my memories of the friends I've lost from this forum...I don't need or desire a memorial page to do that.

Much love,
Chris

05-08-2008, 04:14 PM	#50
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Krista, the issue was that Joe, and especially Christine, did not wish to have that be part of this site - and that she personally would not want to be remembered that way. I'm not trying to put words in anyone's mouth, that's just what I remember about the discussion. In the end, we have to remember that we are guests here in Joe and Christine's home - and respect their feelings about what kind of place it is. I notice Joe has not chimed in on this thread, so I don't know what their feelings are now - as I said, I don't want to put words in anyones mouth. Speaking for myself, I believe it is important to come together, cry, say goodbye, share our favorite memories of our beloved friends who have left us. In real life, we do that at a memorial service. This is why I suggested an online chat might be a good alternative. As for remembering, I will always have my memories of the friends I've lost from this forum...I don't need or desire a memorial page to do that. Much love, Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure