HER2 Support Group Forums - View Single Post - Why do I read posts saying hercept not working

linn65 · 07-19-2013, 07:17 AM

Lani,

That was a PERFECT DUMMY DOWN analogy with the puppy!! Now, I understand what you mean. Thank you.

This is all VERY interesting to me, and I really enjoy learning about the science of it all. Also, it helps me feel better to have a real understanding.

I remember when I first woke up from surgery in recovery. I asked the Doctor how many lymph nodes did you take out. He looked at me and said I don't know four or five now lay back and rest and don't worry. LOL. Then I got my path back and it said 8, and I thought how did he not even know how many lymph nodes!! I have always been one to ask lots of questions my entire life and sometimes people get frustrated by it. I am a curious person, enjoy learning, and with BC the more educated I am on it the better. I believe you are your own best patient advocate. I know other BC patients don't want to know and thats okay too to each there own.

07-19-2013, 07:17 AM	#6
linn65 Senior Member Join Date: Dec 2012 Location: Attica, IN Posts: 371	Re: Why do I read posts saying hercept not working Lani, That was a PERFECT DUMMY DOWN analogy with the puppy!! Now, I understand what you mean. Thank you. This is all VERY interesting to me, and I really enjoy learning about the science of it all. Also, it helps me feel better to have a real understanding. I remember when I first woke up from surgery in recovery. I asked the Doctor how many lymph nodes did you take out. He looked at me and said I don't know four or five now lay back and rest and don't worry. LOL. Then I got my path back and it said 8, and I thought how did he not even know how many lymph nodes!! I have always been one to ask lots of questions my entire life and sometimes people get frustrated by it. I am a curious person, enjoy learning, and with BC the more educated I am on it the better. I believe you are your own best patient advocate. I know other BC patients don't want to know and thats okay too to each there own. __________________ myleftlump.wordpress.com - started blogging my IDC breast cancer 7/2012 diagnosed with multiple solid lesions 7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2 9/2012 biopsy on lymph node - showed malignant 9/2012 Pre-adjunctive TCH chemo. 12/6/12 MRI after Pre-adj. Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow. 12/18/2012 left masectomy with axillary nodes Size 3.2 CM, Nottingham score 9/9 Grade 3, no evidence of in situ carcinoma Areas of angiolymphatic are identified Carcinoma is 0.5 cm from inked deep Margin of excision Attached axillary lymph nodes: metastatic Carcinoma in 6 of 8 nodes. Size of largest node 1.5 cm Extracapsular ER + 73%, PR+2%, HER2+ 2/27/13 6 weeks of IMRT radiation finished 2/2013 Started on Tamoxifan 5 years. 8/2013 will take last Herceptin, 17 treatments total every 3 weeks. BRCA1 & BRAC2 - Negative August 28, 2013 DIEP flap on the left breast. February 2014 Nip & Tuck March 14, 2014 nipple reconstruction and removed port. August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV August 28, 2014 herceptin And projeta starting and port put back in. 3/18/15 stopped arimidex. 3/18/15 progression....Tdm1