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Re: TDM-1 side effects
Kim (Radiant) I had what you described. Extreme extreme fatigue (I could not get up), bad nausea the first days, pain in the abdomen and in the thorax, headaches the first days...I am now at the 8th dose. The pain in the abdomen and liver disappeared after 2 or 3 infusions. I am not exhausted anymore. Just tried. I still have the heavy chest pressure and other problems BUT many mets are not visible anymore on the scans. So I believe that the terrible exhaustion and the pain was due to the cancer cells dying but it is my own interpretation. The Drs just noted things down. So hang on. After a few infusions it may improve a lot and what I hope is that at your next scan you will see the mets shrinking in your liver.
I am adding a question
My blood pressure is rising ans is now high. The cardiologist wanted me to start a treatment but the oncs asked me to wait. I am very worried about that. Did anybody see their blood pressure raise with TDM1?
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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