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Old 06-16-2018, 01:46 PM   #9
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink Re: hope for those with brain mets

I couple of points. My tumor was er/pr negative. My cancer blazed into my liver big time soon after finishing radiation and first line treatments.

A friend who had gone through alcoholism mentioned that milk thistle is good for liver cleansing. I began taking it in 2002. I have continued to take it pretty regularly since that time.

My brain mets appeared at a time that I knew my liver has nearly regenerated after mets treatment. I let the Milk Thistle drop.

Later I realized that I feel better when I take the Milk Thistle (almost always used Jarrow 150 milligrams, one cap/day), so have taken it all these years.

This is the first I have heard that Silibinin could have any effect against brain mets. Such a coincidence that I never had any mets come back in brain or anyplace. My supplements, olive oil and good diet may well have contributed.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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