HER2 Support Group Forums - View Single Post

agness · 08-01-2015, 01:48 AM

I listened to my body after rads and also read up a lot on how to help support the tissue as it healed and here is what helped me heal rather well. I had a LX and not a MX with recon though so I'm not tested in that particular way.

The first 6 months are the most critical for tissue remodeling post rads

Daily massage of the area was critical, applying lymphatic drainage techniques from a licensed LT therapist; she taught me how my body wanted to drain.

Every other day vibration massage with Clarisonic fascism brush. My body asked for this and it turns out that vibrations can improve regeneration of minor blood vessels and lymphatics. I just used general cleanser and again, applied the targeted knowledge of how my body wanted to drain.

Myo-fascism release work to chest walk. Exceedingly uncomfortable during the treatment, once done, this treatment was phenomenal at rehabilitating the area. My chest wall no longer swelled in day areas and lymphatic drainage was a breeze.

Nightly application of castor oil, an anti-inflammatory.

Daily applications of Derma-QOL lotion from Thorne.

08-01-2015, 01:48 AM	#7
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Anyone else get this advice? I listened to my body after rads and also read up a lot on how to help support the tissue as it healed and here is what helped me heal rather well. I had a LX and not a MX with recon though so I'm not tested in that particular way. The first 6 months are the most critical for tissue remodeling post rads Daily massage of the area was critical, applying lymphatic drainage techniques from a licensed LT therapist; she taught me how my body wanted to drain. Every other day vibration massage with Clarisonic fascism brush. My body asked for this and it turns out that vibrations can improve regeneration of minor blood vessels and lymphatics. I just used general cleanser and again, applied the targeted knowledge of how my body wanted to drain. Myo-fascism release work to chest walk. Exceedingly uncomfortable during the treatment, once done, this treatment was phenomenal at rehabilitating the area. My chest wall no longer swelled in day areas and lymphatic drainage was a breeze. Nightly application of castor oil, an anti-inflammatory. Daily applications of Derma-QOL lotion from Thorne. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.