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Old 05-15-2007, 01:03 PM   #11
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Dear Flori,

It sounds like you figured out your schedule very well!

I'm also glad that you are down to 1000mg of Xeloda morning and night hopefully you will be fine w/o any major side effects but the combo still be effective.
I tried the Tykerb at night at first, but it gives me acid reflux so I might just switch to the morning. I'll give it a couple more days though.

Thank you for sharing about the interesting diet Dr Kenneth Conklin has you on! No pasta, no bread, no whole wheat either? How about oatmeal? Cornbread? I eat a cup of Irish oatmeal for breakfast every day. The macrobiotic diet is not allowing rolled oats. I used to eat cheese and put milk in my coffee but my diet does not include dairy either. How about rice? I eat short grain brown (curry) rice almost every day with usually two different kinds of vegetables and either tofu, cold-water fish or lentils or beans for protein. The diet has been the only enjoyable part of this cancer campaign for me. I prefer avoiding the use of 'journey'. Journey sounds a lot like there is something good around the corner.

Do you think his diet prescription has anything to do with omega 3 and omega 6 ratios? Do you know if he writes articles where he describes the rationale of his recommendations? I would be interested reading about it.

I’m glad you have your ativan when you need it, no one wanted to prescribe it for me yet, they just offered it before I was getting my A/C but then I refused. So far I’m OK, of course it’s only the second day! I’m just happy to have finally started before something acted up for me.

Enjoy the beautiful spring,
It is almost too warm here now but we’ll probably get some soothing rain tonight.

Sending blasting away those mets vibes your way,
Fondly,

Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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