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Re: Remembering jml our Jessica
Hi everyone,
I don't know what to say, I have been away for awhile on a dream vacation that I had to put on hold for the longest six years of my life due to my husband's stroke in October 2007.
I feel so blessed I was able to fulfill this dream and enjoyed a long European vacation with my daughter Michelle. We had a great time!!!
Frankly I haven't been visiting the site lately, not because I don't care, I do, but I'm scared knowing that my disease has progressed and I know eventually there will be a point of no return. I'm scared.
I just read about Jessica's passing; before it was Brenda. The statistics don't lie, at least for us stage IV's, even though I considered myself a very especial and unique patient in that I haven't experienced any symptoms since the return of my disease in 2003. Even my oncologist is surprised at how long my body has been able to take all different type of drugs with minimum or no side effects. But, can't help to feel scared with the knowledge that there is no cure, at least not an immediate cure at this stage.
I want to thank everyone on this site who has been with me from the beginning of my disease; I consider you all my friends-- you know who you are.
One in particular who's no longer with us deserves my most profound gratitude and love, with her encouragement and words of compassion she made my treatments much, much easier to take--our very especial angel Sheila!!!
Thank you everyone for your love and support.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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